How local health and care plans overlook the needs of dying people

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Pamela Richards
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1 A low priority? How local health and care plans overlook the needs of dying people Appendices Appendix A To the Freedom of Information Officer, Health and Wellbeing Boards, England By Date: Monday 1 February 2016 Subject: Freedom of Information request Dear Sir/Madam, I am writing to you under the Freedom of Information Act 2000 to request the following information about your authority s health and wellbeing board (HWB): Does your HWB currently have a nominated lead for palliative and/or end of life care for i) adults and/or ii) children? Does your HWB have a joint strategic needs assessment (JSA) either planned or completed for 2016/17? If your HWB does have a JSA either planned or completed for 2016/17, does it include a section on palliative and/or end of life needs? Does your HWB s joint health and wellbeing strategy (JHWS) specifically include people with terminal and/or life-limiting conditions or palliative and/or end of life care services? I would be grateful if you could provide this information by return to s.mccauley@hospiceuk.org. Please do contact me if you want any clarification on the information I am requesting. I look forward to your within 20 working days, as set out by the Act. Kind regards, Mr Stephen McCauley Hospice UK Company Limited by Guarantee, Registered in England and Wales o , Charity registered in England and Wales o and in Scotland o. SC VAT o

2 ote We asked HWBs a question on whether they had a nominated lead for palliative or end of life care. We decided not to include this in the report as many HWBs stated that they did not work in this way; either they did not have nominated leads for any health or social care issue, or they had delegated this responsibility to the level. We also asked a question on whether HWBs had a joint strategic needs assessment (JSA) planned or completed for 2016/17. Again, many HWBs replied that they did not work in this way. In some areas, needs assessments are completed on an ongoing basis and remain a live document, rather than as a single document that is completed or updated annually. To the Freedom of Information Officer, Clinical Commissioning Groups, England By Date: Monday 1 February 2016 Subject: Freedom of Information request Dear Sir/Madam, I am writing to you under the Freedom of Information Act 2000 to request the following information: Does the clinical commissioning group () currently have a nominated lead for palliative and/or end of life care for i) adults and/or ii) children? Does the have a specific palliative and/or end of life care strategy for i) adults and/or ii) children? I would be grateful if you could provide this information by return to s.mccauley@hospiceuk.org. Please do contact me if you want any clarification on the information I am requesting. I look forward to your within 20 working days, as set out by the Act. Kind regards, Mr Stephen McCauley Hospice UK 2

3 orth West Appendix B Responses to the freedom of information request from Hospice UK to health and wellbeing boards Region Public Authority If your HWB does have a JSA either planned or completed for 2016/17, does it include a section on palliative and/or end of life needs? Does your HWB s joint health and wellbeing strategy (JHWS) specifically include people with terminal and/or lifelimiting conditions or palliative and/or end of life care services? Blackburn with Darwen Borough Blackpool o o Bolton Metropolitan Borough o o Bury Metropolitan Borough Cheshire East Cheshire West and Chester Cumbria County Halton Borough Knowsley Metropolitan Borough Lancashire County Liverpool City Manchester City Oldham Metropolitan Borough Rochdale Metropolitan Borough Salford City o o Sefton Metropolitan Borough St Helens Borough Stockport Metropolitan Borough Tameside Metropolitan Borough Trafford Warrington Wigan Metropolitan Borough Wirral Metropolitan Borough 3

4 West Midlands orkshire and Humber orth East Darlington Borough o o Durham County Gateshead Metropolitan Borough Hartlepool Borough Middlesbrough Borough ewcastle upon Tyne City orth Tyneside orthumberland County Redcar & Cleveland South Tyneside Metropolitan Borough Stockton-on-Tees Borough Sunderland City Barnsley Borough o o Bradford Metropolitan Calderdale City of ork Doncaster Metropolitan ot Borough East Riding of orkshire Hull City Kirklees Metropolitan Borough Leeds City orth Lincolnshire orth East Lincolnshire orth orkshire County Rotherham Metropolitan Borough Sheffield City Wakefield City Metropolitan District Birmingham City Coventry City Dudley Metropolitan Borough Herefordshire Sandwell Metropolitan Borough 4

5 London East of England East Midlands Shropshire Staffordshire County Stoke-on-Trent City Solihull Metropolitan Borough Telford & Wrekin Walsall Metropolitan Borough Warwickshire County o o Wolverhampton City Worcestershire County Derby City Derbyshire County Leicester City Leicestershire County Lincolnshire County Milton Keynes orthamptonshire County ottingham City ottinghamshire County Rutland County Bedford Borough Cambridgeshire County Central Bedfordshire Essex County Hertfordshire County Luton Borough orfolk County Peterborough City Southend-on-Sea Suffolk County Thurrock City of London Corporation City of Westminster London Borough of Barking & ot Dagenham London Borough of Barnet London Borough of Bexley ot London Borough of Brent London Borough of Bromley London Borough of Camden ot London Borough of Croydon 5

6 South West London Borough of Ealing London Borough of Enfield o o London Borough of Greenwich London Borough of Hackney London Borough of Hammersmith & Fulham London Borough of Haringey London Borough of Harrow London Borough of Havering London Borough of Hillingdon London Borough of Hounslow ot London Borough of Islington London Borough of Lambeth London Borough of Lewisham London Borough of Merton London Borough of ewham London Borough of Redbridge London Borough of Richmond upon Thames London Borough of Southwark London Borough of Sutton London Borough of Tower Hamlets London Borough of Waltham Forest London Borough of Wandsworth Royal Borough of Kensington & Chelsea Royal Borough of Kingston upon Thames Bath & orth East Somerset Bournemouth and Poole o o Bristol City Cornwall Devon County Dorset County Gloucestershire County of the Isles of Scilly orth Somerset Plymouth City Somerset County South Gloucestershire District Swindon Borough 6

7 orth West South East Torbay Wiltshire Bracknell Forest Brighton and Hove City Buckinghamshire County East Sussex County Hampshire County Kent County Isle of Wight o o Medway Oxfordshire County Portsmouth City Reading Borough Slough Borough South Kent Coast Southampton City Surrey County West Berkshire West Sussex County Royal Borough of Windsor and Maidenhead Wokingham Responses to the freedom of information request from Hospice UK to clinical commissioning groups Region Public Authority Does the currently have a nominated lead for palliative and/or end of life care for i) adults? Does the currently have a nominated lead for palliative and/or end of life care for ii) children? Does the have a specific palliative and/or end of life care strategy for i) adults? Does the have a specific palliative and/or end of life care strategy for ii) children? HS Blackburn with Darwen HS Blackpool HS Bolton HS Bury 7

8 HS Central Manchester HS Chorley and South Ribble HS Cumbria HS East Lancashire HS Eastern Cheshire HS Fylde & Wyre HS Greater Preston HS Halton HS Heywood, Middleton & Rochdale HS Knowsley HS Lancashire orth HS Liverpool HS orth Manchester HS Oldham HS Salford HS South Cheshire HS South Manchester HS South Sefton HS Southport and Formby HS St Helens HS Stockport 8

9 orth East HS Tameside and Glossop HS Trafford HS Vale Royal HS Warrington HS West Cheshire HS West Lancashire HS Wigan Borough HS Wirral HS Darlington HS Durham Dales, Easington and Sedgefield HS Hartlepool and Stocktonon-Tees HS ewcastle Gateshead HS orth Durham HS orth Tyneside HS orthumberland HS South Tees HS South Tyneside HS Sunderland 9

10 orkshire and Humber HS Airedale, Wharfedale and Craven HS Barnsley HS Bassetlaw HS Bradford City HS Bradford Districts HS Calderdale HS Doncaster HS East Riding of orkshire HS Greater Huddersfield HS Hambleton, Richmondshire and Whitby HS Harrogate and Rural District HS Hull HS Leeds orth HS Leeds South and East HS Leeds West HS orth East Lincolnshire HS orth Kirklees HS orth Lincolnshire HS Rotherham HS Scarborough 10

11 West Midlands and Ryedale HS Sheffield HS Vale of ork HS Wakefield HS Birmingham CrossCity HS Birmingham South and Central HS Cannock Chase HS Coventry and Rugby o o o o HS Dudley HS East Staffordshire HS Herefordshire HS orth Staffordshire HS Redditch and Bromsgrove HS Sandwell and West Birmingham HS Shropshire HS Solihull HS South East Staffs and Seisdon and Peninsular HS South Warwickshire o o o o 11

12 East Midlands HS South Worcestershire HS Stafford and Surrounds o o o o HS Stoke on Trent ot ot HS Telford & Wrekin HS Walsall HS Warwickshire orth HS Wolverhampton o o o o ot HS Wyre Forest ot HS Corby HS East Leicestershire and Rutland HS Erewash HS Hardwick HS Leicester City o o o o HS Lincolnshire ot ot East HS Lincolnshire ot ot South HS Lincolnshire ot ot South West HS Lincolnshire West HS Mansfield & Ashfield HS Milton 12

13 East of England Keynes HS ene o o o o HS ewark & Sherwood HS orth Derbyshire HS ottingham City HS ottingham orth & East HS ottingham West HS Rushcliffe HS Southern Derbyshire HS West Leicestershire o o o o o o o o o o o o HS Basildon and Brentwood HS Bedfordshire HS Cambridgeshire and Peterborough HS Castle Point, Rayleigh and Rochford HS East and orth Hertfordshire HS Great armouth & Waveney HS Herts Valleys 13

14 London HS Ipswich and East Suffolk HS Luton HS Mid Essex HS orth East Essex HS orth orfolk HS orwich HS South orfolk HS Southend HS Thurrock HS West Essex HS West orfolk HS West Suffolk o o o o HS Barking & Dagenham HS Barnet HS Bexley HS Brent HS Bromley HS Camden HS Central London (Westminster) HS City and Hackney HS Croydon HS Ealing HS Enfield 14

15 HS Greenwich HS Hammersmith and Fulham HS Haringey HS Harrow HS Havering HS Hillingdon HS Hounslow HS Islington HS Kingston HS Lambeth HS Lewisham HS Merton HS ewham HS Redbridge HS Richmond HS Southwark HS Sutton HS Tower Hamlets HS Waltham Forest HS Wandsworth HS West London (K&C & QPP) ot ot 15

16 South East South West HS Bath and orth East Somerset HS Bristol HS Gloucestershire HS Kernow HS orth Somerset HS orth, East, West Devon HS Somerset HS South Devon and Torbay HS South Gloucestershire HS Swindon HS Wiltshire HS Ashford HS Aylesbury Vale HS Bracknell and Ascot HS Brighton & Hove HS Canterbury and Coastal HS Chiltern HS Coastal West Sussex HS Crawley HS Dartford, Gravesham and Swanley 16

17 HS Dorset HS East Surrey HS Eastbourne, Hailsham and Seaford HS Fareham and Gosport HS Guildford and Waverley HS Hastings & Rother HS High Weald Lewes Havens HS Horsham and Mid Sussex o o o o HS Isle of Wight HS Medway HS ewbury and District HS orth & West Reading HS orth East Hampshire and Farnham HS orth Hampshire HS orth West Surrey HS Oxfordshire HS Portsmouth HS Slough HS South 17

18 Eastern Hampshire HS South Kent Coast HS South Reading HS Southampton HS Surrey Downs HS Surrey Heath HS Swale HS Thanet HS West Hampshire HS West Kent HS Windsor, Ascot and Maidenhead HS Wokingham 18

Speaking from experience: The views of the first cohort of trainees of Step Up to Social Work

Speaking from experience: The views of the first cohort of trainees of Step Up to Social Work Research Report June 2013 Mary Baginsky & ClaireTeague Contents Table of figures 5 Acknowledgements 7 Executive