Effective Stakeholder Consultation: A Comparative Analysis

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Effective Stakeholder Consultation: A Comparative Analysis Sameedha Mahadkar, Grant Mills and Andrew D.F. Price Loughborough University

Outline Background Research Method -Cross Comparison of Consultation Evaluation Frameworks -Action Research: Local Primary Care Trust Consultation Case Study -Web Document Analysis: Review of PCT Web Published Consultations Findings Case Studies Conclusion Future Research

The Healthcare Infrastructure Landscape Mills, 2009 Complexity and rapid change of the healthcare system Many stakeholders involved Complex funding mechanisms Changing patterns of demand and use of healthcare services Legacy of out-dated buildings and cultures Lifecycles mismatched Multiple supply chains

Policy Context NHS Act 2006, Rev 07 Proposal development and consideration for service changes The decision making process of commissioners The reconfiguration of services and significant structural changes Service provision planning The assessment of needs and preferences of their population Setting local priorities and deciding what services are commissioned Decisions: affecting the operation of those services The ongoing quality improvement process as a result of feedback

Policy Context The Health and Social Care Act 2001 Section 242: Local Government and Public Involvement in Health Act Affordable Involve, consult and respond to users Make explicit the decision making framework OSC, Secretary of State and IRP Content of a consultation or the time that has been allowed is appropriate The reasons given for not carrying out consultation are adequate, or The proposal is in the interests of the health service in its area OSC-overview & scrutiny committee IRP-independent review panel Acceptable Decision made somewhere in between these factors Clinically Safe Guidance for NHS organisations on Section 242 (1B) of the NHS Act 2006 (DH 2007)

Policy Context Code of Practice on Consultation (2008) Developed following a review of government consultation practices in 2007 Number of public sector organisations signed up to it Provides guidance on When to consult Duration Scope Accessibility Clarity of Consultation Responsiveness of Exercise Capacity to consult

Research Method Consultation Evaluation Frameworks Action Research: Local Primary Care Trust Consultation Case Study Web Document Analysis: Review of PCT Web Published Consultations

Consultation Evaluation Framework Stakeholders are more likely to become interested in consultation activities when an issue affects them, which can be achieved through accountability based and issue based consultation- Abelson and Eyles (2002) There is a growing consensus that health care policy reform built upon citizen participation is desirable, benefiting from: information sharing, generating better options, adoption, positive feelings of citizenship, trust and social capital, social cohesion, and reduction in spending- Zena Simces and Associates (2003) More clarity is needed about the type of decisions for which public involvement is most appropriate, the methods that are most effective and cost effective, and how different initiatives complement each other- Florin and Dixon (2004)

Consultation Evaluation Framework- Checklist

Consultation Evaluation Framework Representativeness of Participants- stakeholder selection and weighting, participant role, actual representativeness, representative sampling Participant Independence- unbiased process, information interpretation, choice of experts, accessibility, readability and digestibility of information Influence on Policy- output of procedure impacting policy, legitimacy and accountability of decision making, consensus over the decisions Process Transparency- regulatory, publicity, auditibility, availability, accessibility, what point in the decision making process is input being sought? clarity of type of feedback

Consultation Evaluation Framework Resources- access to appropriate resources, time demands of exercise, required expertise, estimate costs and factor in uncertainties, detail physical requirements to conduct exercise Task Definition- context, scope, aims, rationale for the exercise, consistency, competence, method validation Structured Decision Making- approach selection, what are the standards and indicators? monitor trends and benchmark, budget considerations, ethical and confidentiality issues, responsibility for actions to mitigate problems, right leadership

Research Method Cross Comparison of Consultation Evaluation Frameworks Action Research: Local Primary Care Trust Consultation Case Study Web Document Analysis: Review of PCT Web Published Consultations

Local Primary Care Trust Consultation Case Study Engaged in a Review of Estates & Service Design of a local Primary Care Trust Key goals: Improve access to services Reduced waiting times Prevention of urgent acute hospital admissions Support provision of care closer to home Providing better health for younger children and obesity prevention Active engagement with: Community Service and Estates Review Programme Manager Associate Director of Communication Engagement Engagement and Involvement Manager

Local Primary Care Trust Consultation Case Study The final sample of individual public responses was over 1000 questionnaires, letters, emails and independently organised questionnaires and petition responses together with organisational letters representing groups Content analysis and document analysis were used from two directions: the first perspective was from that of the respondents making comments; and the second was to direct those comments and align them with the Trust s aims, proposals and evidence base. Qualitative comments were counted using detailed coding

Local Primary Care Trust Consultation Case Study- Methodology Physical Questionnaires N = 664 Input Questionnaire Data Code Questionnaire Data (for Analysis 1&2) To reduce error (3 x researchers data inputting, 2 x researchers applying codes to all questionnaires, and 2 x researchers reducing data and carrying out analysis) Data Reduction and Grouping (for Analysis 1 & 2) Raw Questionnaire Data (electronic) Analysis 1 - Overall Care in one place and closer to home Non-support Neutral Support Inference, Analysis & Presentation (for Analysis 1 & 2)

Local Primary Care Trust Consultation Case Study Analysis 1 Grounded analysis of public comments, to identify any additional aspects and ideas emerging from the data (either aims, proposals, justification or practical ideas), along with quantitative analysis of the questionnaires Analysis 2 The alignment of public comments with strategic plans and proposals to provide a direct response and highlight positive and negative comments against strategic Trust s aims and proposals and previous justification (extracted using document analysis from the Public Consultation Community Health Service Review document) Analysis 3 Involved in the document and content analysis of all letter responses, using coding to provide an overall view and site specific perspectives Input Questionnaire data Code Questionnaire Data (for Analysis 1,2&3) Inference, Analysis & Report

Research Method Cross Comparison of Consultation Evaluation Frameworks Action Research: Local Primary Care Trust Consultation Case Study Web Document Analysis: Review of PCT Web Published Consultations

Web Document Analysis: Review of PCT Published Consultations Investigate consultation exercises with regards to significant estates and service changes (149 PCTs in England) Categorised based on legislative structure developed in line with Section 242 of the NHS Act 2006 (Rev.07) (a) The planning of the provision of those services (b) The development and consideration of proposals for changes in the way those services are provided (c) Decisions-affecting the operation of those services Further categorised and analysis based on Consultation type (estates, services, transport) Activity description Sampling method (size, frame, distribution)

Web Document Analysis: Findings Sample Method: Categorisation 20% 1% 11% 5% 5% 7% 36% Questionnaire Email Feedback Telephone Survey Public Meetings Focus Groups PPI Forums Written Submissions & Comments Health Fairs and Events 9% 6%

Web Document Analysis: Findings Consultation Categorisation Transport 0% Services 62% Estates 38% Estates Services Transport

Web Document Analysis: Findings Categorised PCTs having over 100 participants in consultations 20% No of PCTs having 1 Consultation 0% 50% No of PCTs having 2 Consultations No of PCTs having 3 Consultations 30% No of PCTs having 4 Consultations

Web Document Analysis: Findings Large variances in the level of information provided to the public for their comments, Some have detailed patient, carer, public involvement (PcPI) needs analysis and plans which facilitates the engagement process Some consultations on specific building qualities (most frequent consultation issues are those relating to Master Planning) Concentration on specific services or estates- Not provided a broader region wide design strategy More reliant on open meetings and board room minutes rather than more stakeholder engagement and targeted consultation events

Web Document Analysis: Findings Worked with regulators such as DH and other agencies such as Healthcare for London to deliver broad consultation-benefit from larger sample sizes however little data at local level Very few PCTs provided a response to the feedback received from the consultation and have indicated in detail how their plans have or have not changed due to the responses Some have used scenario planning approaches that enable the balancing of benefits, simulation, and realistic decision making on the basis of hypothetical decisions designed to highlight trade-offs between either different values (e.g. equity and equality) timescales (short term/long term) or priorities Some have used independent consultants to make an analysis of the effectiveness of pre, during and post consultation phases

Web Document Analysis: Findings Most have a stakeholder engagement strategy that broadly defines the principles and approaches taken to consultation, however, these have often not answered the more complex question of: What importance does each stakeholder hold throughout the decision making process? What should be the content of decision making?

AVERAGE IMPORTANCE Case Study: Liverpool PCT In 2002, developed a new Model of Care to fundamentally shift the planning of local health services- Out of Hospital Strategy. Organised in three phases: A self-completed questionnaire along with several visits to community groups and neighbourhood committees - Over 10,000 responses received, topics were generated for further investigation 40 IMPORTANCE SUMMARY Using the outputs of the first phase a deliberative event workshop was held with 150 participants to raise the issues of various trade-offs (not all services can be delivered in all localities) and also viability and affordability constraints. 30 20 10 26.7 34.7 14.4 24.2 Four service attributes identified (using conjoint analysis for a sample of over 600 frequent users of primary care services). Enabled a quantification of the trade-offs 0 OPENING HOURS TRAVEL TIME GP AVAILABILITY FACTOR SERVICES AVAILABILITY

Case Study: Liverpool PCT 13 focus groups with a variety of harder-to-reach groups, a multi disciplinary workshop for health and social care staff along with 3 road shows for health professionals Undertook accessibility planning Undertook a four-facet review of all the primary and community health care buildingsinvestigating physical condition, functional suitability, space utilisation and ability to meet statutory requirements. Developed a primary care infrastructure model based on space allocation data

Case Study: Trafford PCT Public consultation on inpatient beds at the Altricham General Hospital. Data were collected using consultation document response form. Quantitative analysis of the data using SSPS software was conducted using descriptive statistics such as frequencies and cross tabulations Qualitative data from the open questions- reported using access queries, furthermore each response was analysed using thematic coding framework Benchmarked against the Cabinet Office Guidelines using subjective grading

Conclusion Wide and varied interpretations of how PCTs conduct public consultation Lack of a clear definition and guidance to determine when care, estates or transport structural change consultation should be conducted Definitive approach required to determine at what point of the infrastructure planning process should these be carried out Policies are driving consultation practice improvements, however, further tools and guidance is also needed Little empirical evidence that supports or refutes the hypothesis that consultation and public involvement can contribute to the quality of healthcare planning and delivery

Conclusion Studies making an evaluation of the involvement of stakeholders in the definition and assessment of value, suggest that the public are uncomfortable making resource allocation choices, however, others state that this is not the case when stakeholders are given sufficient time and adequate support and information Very few Trusts are using the most advanced approaches to priority setting. Instead they are selecting to use measurement methods that may bias outcomes or samples that may be inadequate Few Trusts appear to use modelling, simulation or visualisation tools (e.g. GIS) the stakeholder consultation practice would benefit from the utilisation of these tools and will also help to improve stakeholder judgement making Lack of understanding on how stakeholder involvement should integrate with the business planning process

Future Research What are all the stakeholder involvement approaches and methods that have been used by PCTs? How can stakeholder consultation processes be further defined and aligned with decision making processes? What are the detailed measures and analysis instruments that can be used to measure the success of stakeholder consultation? How can modelling, simulation and visualisation tools be used for the purpose of stakeholder consultation to better provide information and enable stakeholder judgements? How can a new consultation approach, process and method be developed and used to involve stakeholders in accessibility and transport infrastructure planning?

Thank-You! Contact: S.Mahadkar@lboro.ac.uk G.R.Mills@lboro.ac.uk