European Bioethics Training Camp

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European Bioethics Training Camp Individualized Medicine and the Ethics of Access 18. 24. August 2014 Bad Honnef, Germany International and Interdisciplinary Conference for Students Online registration http://bioethicscamp.org

III WELCOME Dear colleagues and students, it is a great pleasure to invite you to the European Bioethics Training Camp 2014 in Bad Honnef/Rhine Germany. Leading professionals in the field of bioethics from all over the word are taking part in the European Bioethics Training Camp. Speakers representing bioethics, medicine, biology, pharmacy, philosophy, theology, law as well national and international policy makers are presenting the latest topics in biomedical research and bioethics. The program of the camp is based on lectures, workshops and excursions. Our one-week bioethics training camp is an excellent opportunity to meet students and bioethicists from more than 15 different countries. To guarantee a real international training camp only 5 students per nation will be permitted. We are looking forward to meeting you here at our center in Bad Honnef/Rhine in August. Prof. Dr. Ralph Bergold Director Catholic-Social Institute Ulrich Dreismickenbecker Program Coordinator

III program II Monday, 18. August 2014 9.00 am Check-in 11.00 am Introduction Presentation of the program, participants and speakers 2.00 pm Opening lecture Me Medicine vs. We medicine Prof. Dr. Daniela Steinberger, Frankfurt a. M. 4.30 pm Bioethics Lecture Introduction to the history, methods and practice of Bioethics Prof. Dr. Renzo Pegoraro, Padova 8.00 pm Social program in Bonn II Tuesday, 19. August 2014 9.00 am 6.00 pm Implementing Individualized medicine Scientific, ethical, legal and moral issues Workshop 1 4 WS 1: Genetic counseling in a genomic world Dr. Friedmar Kreuz, Dresden WS 2: Individualized medicine and cancer care Dr. van Laarhoven, Amsterdam WS 3: Big data, Bioinformatics and individualized medicine Prof. Dr. Kris Dierickx, Leuven WS 4: Legal issues in genomic research Prof. Dr. Amnon Carmi, Haifa

III program 6.00 pm Social program and dinner in Cologne II Wednesday, 20. August 2014 9.00 am 6.00 pm Individualized medicine in practice Excursions to labs, research centers, clinics and pharmaceutical companies II Thursday, 21. August 2014 9.00 am Bioethics Lecture Ethics of Access: Philosophical Approaches Prof. Dr. Thomas Pogge, Yale 11.30 am Ethics of Access: Philosophical Approaches Discussion groups and presentation by the students 3.00 pm Research infrastructure and regulatory issues in Germany and Europe Excursion to Bonn II Friday, 22. August 2014 9.00 am Bioethics Lecture Individualized Medicine: Challenges in a globalised world Prof. Dr. Jozef Glasa, Bratislava 11.30 am Bioethics Discussion on Individualized Medicine: Challenges in a globalised world 2.00 pm Conflict and consensus How to deal with different values in pluralistic societies?

III program II Saturday, 23. August 2014 9.00 am 1.00 pm Individualized medicine Discussion groups on cases in daily hospital practice DG 1: Prof. Dr. Berna Arda, Ankara DG 2: Prof. Dr. Sören Holm, Manchester DG 3: Prof. Dr. Tonci Matulic, Zagreb DG 4: Prof. Dr. Kiarash Aramesh, Teheran DG 5: Prof. Dr. Amnon Carmi, Haifa 3.00 pm Excursion Social program Upper Middle Rhine World Heritage Vine testing 9.00 pm Farewell Party at the KSI in Bad Honnef II Sunday, 24. August 2014 10.00 am Closing Lecture Individualized medicine, the declaration of Helsinki and the idea of protection Prof. Dr. Amnon Carmi, Haifa 12.00 am End of the European Bioethics Training Camp 2014 Departure

III PRELIMINARY LIST OF SPEAKERS 2014 Prof. Dr. Kiarash Aramesh Professor at and Vice-President of the Medical Ethics and History of Medicine Research Center, University of Medical Sciences, Tehran Iran Prof. Dr. Berna Arda Professor at Ankara University School of Medicine, Department of Medical Ethics, Ankara Turkey Prof. Dr. Pierre Boitte Professor of Medical Ethics. Studies in Philosophy and Sociology. Catholic University Lille, Centre of Medical Ethics, Department of Ethics France Prof. Dr. Amnon Carmi Director of the International Center of Health, Law and Ethics; UNESCO Chair in Bioethics, University of Haifa Israel Prof. Dr. Kris Dierickx Professor of Medical Ethics Centre for Biomedical Ethics and Law Faculty of Medicine KU Leuven Belgium Prof. Dr. Jozef Glasa President of the Central and East European Association of Bioethics (CEEAB); Director of the Institute of Medical Ethics and Bioethics in Bratislava Slovakia Prof. Dr. Sören Holm Professor of Bioethics. Department of Healthcare Ethics and Law at the School of Law, University Manchester England. Vice-President of the International Association of Bioethics. Dr. Friedmar Kreuz Medical doctor and expert in Genetic counseling in Dresden. Expertise in predictive and prenatal genetic testing in hereditary ataxia Germany Prof. Dr. Tonci Matulic Professor of Moral Theology and Catholic Social Teaching at the University of Zagreb Croatia Prof. Dr. Don Renzo Pegoraro Chancellor of the Pontifical Academy for Life, Rome Italy. Director of the Scientific Board of the Lanza Foundation in Padova. Member of the board of the European Association of Centers of Medical Ethics (EACME). Prof. Dr. Thomas Pogge, Yale Director of the Global Justice Program and the Leitner Professor of Philosophy and International Affairs at Yale University USA

III REGISTRATION II Conference Office Contact Ulrich Dreismickenbecker e-mail dreismickenbecker@wertekonzepte.de Telefon (0049) 69915312 Fax (0049) 69915320 Wertekonzepte Speyer Vergissmeinnichtweg 31 67346 Speyer Germany II FEES 550, including board (08.00 am breakfast, 01.00 pm lunch, 03.30 pm coffee break, 06.00 pm dinner) and lodging (double rooms) as well as our organised program and conference materials. Cancellation policy For reservations cancelled on/or before 30th June 2014 the full amount will be refunded less a 20, handling fee. For reservation cancelled after 30th June 2014, or if you arrive later or leave earlier than on the dates indicated on your reservation form, the total amount will be charged and no refunds can be made.

III REGISTRATION PROCESS II IMPORTANT DATES Registration Deadline 30th June 2014 Deadline to pay your fees 18th July 2014 Delivery of your conference papers 21st July 2014 Start of the European Bioethics Training Camp 18th August 2014, 11.00 am End of the European Bioethics Training Camp 24th August 2014, 12.00 am II Venue For your directions please visit: www.ksi.de II Conference Center Selhofer Straße 11 53604 Bad Honnef Telefon (0049) 2224 955-0 Telefax (0049) 2224 955-100 info@ksi.de www.ksi.de

III APPLICATION FORM Please use this form to send us your registration by post. Don t forget to frank it. It is easier to use the online registration form on our website: http://bioethicscamp.org Katholisch-Soziales Institut Frau Rita Schneider Selhofer Straße 11 53604 Bad Honnef Telefax (0049) 2224 955-100

III APPLICATION FORM I European Bioethics Training Camp for Students Individualized Medicine and the Ethics of Access City, Date Your signature Your address Last Name, First Name Name and address of your university Street, Street Nummer Postal Code, City, Country Date of Birth Your e-mail-address