European Kidney Patients Federation REPORT ON EUROPEAN AND EU COUNTRIES ORGAN DONATION AND TRANSPLANTATION FIGURES FOR 2015 FROM THE ONT NEWSLETTER

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1 European Kidney Patients Federation REPORT ON EUROPEAN AND EU COUNTRIES ORGAN DONATION AND TRANSPLANTATION FIGURES FOR 2015 FROM THE ONT NEWSLETTER ON TRANSPLANTATION FOR THE EDQM OF THE COUNCIL OF EUROPE SEPTEMBER 2016

2 Contents: 2015 European Organ Donation and Transplantation Data: Summary Findings 3-4 Deceased Organ Donors 5. Graph 6. Data Kidney Transplantation from Deceased Donors 7. Graph 8. Data Kidney Transplantation from Living Donors 9. Graph 10. Data Kidney Transplantation 11. Graph 12. Data Liver Transplantation 13. Graph 14. Data Heart Transplantation 15. Graph 16. Data Lung Transplantation 17. Graph 18. Data Pancreas Transplantation 19. Graph 20. Data Small Bowel 21 Data Deceased Organ Transplantation 22. Graph 23. Data Living Organ Transplantation 24. Graph 25. Data Deceased and Living Organ Transplantation 26. Graph 27. Data EU 28 Countries Graphs Deceased Organ Donors Kidney Transplantation from Deceased Donors Kidney Transplantation from Living Donors Kidney Transplantation Liver Transplantation Heart Transplantation Lung Transplantation Pancreas Transplantation Small Bowel Data Deceased Organ Transplantation Living Organ Transplantation Deceased and Living Organ Transplantation

3 Summary, Findings and Comments By Mark Murphy President of the European Kidney Patients Federation The European Directorate for the Quality of Medicines and Healthcare (EDQM) of the Council of Europe has published its 2016 Newsletter on the international figures on organ donation and transplantation for The European Kidney Patients Federation included the 41 European Countries and then extracted the EU countries so we have presented two sets of comparison graphs. We have chosen to use the Eurostat population estimates (in appendix) published in July 2016 rather than the populations used by the Organización Nacional de Trasplantes (O.N.T), in the production of this report with the exception of Belarus, Georgia, Moldova, Russia and Ukraine where we used the population figures from ONT. All rankings are achieved by using per million of population comparisons. Deceased Donors: Croatia tops the table with coming a close second. Both countries have been either in 1 st or 2 nd place since Croatia achieved deceased donors of 40 per million of population. Three other countries, Iceland,, and make up the total of 5 countries with organ donation pmp of over 30. is in 18 th place out of a total of 40 countries with its deceased donor rate of pmp. Although is up from 23 rd place it is a long way from its 6 th position in Only 13 countries are reporting the utilisation of non-heart beating (or cardiac death donors). The is the only country that has more non-heart beating donors than heart beating at 156 out of 284, 55%. In the UK, 42% of their deceased donors are non-heart beating. are the up and coming extra country utilising non-heart beating donors at 17%. The 3 countries together utilised 1,018 of these donors or 84% of the 1,208 used in total across Europe. at 16 th place was one of the biggest improvers in the year (excluding Iceland). at 27 th place is still suffering from their allocation scandal. 10 years ago they were in 14 th place. Kidney Transplantation from Deceased Donors: and Croatia as you would expect share the top 2 spots yet again, as they have the most deceased donors. for the 1 st time are in the top 10 at 9 th place from 25 th a year ago. is in 23 rd place, a disappointment, considering between we were in the top 10 countries. is the only country with double our deceased donor kidney transplant rate, versus pmp for. 7 countries in total have a rate above 40 pmp and 9 more between pmp. Kidney Transplantation from Living Donors: These statistics are much more consistent across the years with Turkey, and Cyprus in the top 3 for the last 4 years. Georgia has jumped into 8 th place. slipped back to 16 th but 10 years ago we were in 29 th place. Latvia had a good year going from 27 th to 18 th place. Slovenia, Malta and Luxembourg are the 3 countries without living kidney donors. I am presuming Malta and Luxembourg have an arrangement with other EU countries but I know Slovenia does not. Deceased and Living Kidney Transplantation Combined: and the swopped the top places from last year. has come 3 rd highest for the 1 st time, Turkey is in 14 th place, with its dominant living donor programme, like Cyprus which fall to 27 th place because of only having 1 deceased donor transplant. at 21 st place is its worst position since 2010 when they came in 25 th, they enjoyed 12 th position in both 2011 and 2013.

4 Liver Transplantation: Croatia have topped liver transplantation for the last 6 years and and have shared 2 nd and 3 rd spot in the same period. The best improving country has been the who have 8 th place for the 1 st time. Surprisingly Norway has slipped to 10 th place, its poorest position since However, s 15 th place shows up in part of our non-use of living donors for liver transplantation. Of the 14 th places above only 2 other countries and do not use liver donors. Heart Transplantation: Slovenia have taken 1 st place 6 out of the last 7 years at an outstanding rate of pmp as a result of 24 heart transplants. The top 10 countries are almost always the same ones. comes in at 20 th place just above the and the. The lower rates from such established countries suggests that alternatives to actual heart transplantation are in use in the UK and Holland and maybe also? Lung Transplantation: 18 EU countries are transplanting lungs. have always topped the chart for at least the last 10 years. There are a number of neighbouring countries to that avail of the services in Vienna. had no lung transplantation 10 years ago, and now is consistently in the top 3 rd or 4 th place in Europe, by far the highest position has held for any of these charts. Pancreas Transplantation: Norway is in the number 1 spot over the last 5 years. In 2 nd place the UK are also very consistent and have never been lower than 4 th place in the last 10 years. In 2008 was in 4 th place however we are not on the chart this time with zero pancreas transplants for Small Bowel Transplantation: The and lead this small group of 8 countries attempting to develop this organ transplantation programme. All Deceased Organ Transplantation: Croatia has a slight lead over and has lead for 5 of the last 6 years despite having yet to transplant lungs, and the small bowel. s 15 th place is a small improvement which would have been much better if we did not have the gap in our pancreas transplantation programme. All Living Organ Transplantation: A very different set of leaders top this group with Turkey well ahead followed by the and Cyprus. These 3 countries are very dependent on living donors and so are Georgia who jumped 10 places to come in 8 th place. Luxembourg, Malta and Slovenia are the 3 countries who do not have living organ donors. All Organ Transplantation Combined: heads the combined table for the 1 st time in at least 10 years with over 100 transplants per million of population. This is an outstanding achievement which has only been achieved by embracing all organ donor types, deceased, heart beating and non-heart beating and living donors for kidney and liver transplants. is in 16 th position, up two places but there is nothing remarkable about our progress with the exception of the lung data.

5 Croatia Iceland Slovenia Norway Belarus * Latvia Slovakia Switzerland Malta Bulgaria Turkey Luxembourg Greece Cyprus Russia * Bosnia & Herz Moldova * Macedonia Ukraine * EUROPEAN DECEASED ORGAN DONORS per million of population Heart Beating Non Heart Beating

6 EUROPEAN DECEASED ORGAN DONORS D E C E A S E D D O N A T I O N S p e r m I I l I o n o f p o p u l a t i o n Rank Rank Rank Rank Rank Rank Rank Rank Rank Rank Rank Pop mill Non Heart Heart Non Heart Heart Countries eurostat Beating Beating Total Beating Beating Total Croatia Iceland Slovenia Norway Belarus * Latvia Slovakia Switzerland Malta Bulgaria Turkey Luxembourg Greece Cyprus Russia * Bosnia & Herz Moldova * Macedonia Ukraine * Totals

7 EUROPEAN KIDNEY TRANSPLANTATION FROM DECEASED DONORS per million of population Croatia Norway Latvia Belarus * Slovenia Slovakia Switzerland Malta Turkey Greece Bulgaria Russia * Bosnia & Herz Moldova * Macedonia Cyprus Ukraine *

8 EUROPEAN KIDNEY TRANSPLANTATION FROM DECEASED DONORS Rank Rank Rank Rank Rank Rank Rank Rank Rank Rank Rank Population Per million Countries (millions) Total of population Croatia Norway Latvia Belarus * Slovenia Slovakia Switzerland Malta Turkey Greece Bulgaria Russia * Bosnia & Herz Moldova * Macedonia Cyprus Ukraine * Totals

9 E U R O P E A N K I D N E Y T R A N S P L A N T A T I O N F R O M L I V I N G D O N O R S per million of population Turkey Cyprus Iceland Georgia * Norway Switzerland Montenegro Latvia Macedonia Bosnia & Herz Slovakia Greece Ukraine * Belarus * Bulgaria Russia * Croatia Moldova *

10 EUROPEAN KIDNEY TRANSPLANTATION FROM LIVING DONORS Number of Kidney Transplants From Living Donors Rank Rank Rank Rank Rank Rank Rank Rank Rank Rank Rank Pop mills Per million Countries eurostat Total of population Turkey Cyprus Iceland , Georgia * Norway Switzerland Montenegro Latvia Macedonia Bosnia & Herz Slovakia Greece Ukraine * Belarus * Bulgaria Russia * Croatia Moldova * Totals

11 EUROPEAN ALL KIDNEY TRANSPLANTATION COMBINED per million of population Croatia Norway Turkey Latvia Switzerland Belarus * Slovakia Slovenia Cyprus Iceland Malta Georgia * Montenegro Greece Bulgaria Russia * Bosnia & Herz Macedonia Ukraine * Moldova * Deceased Living

12 EUROPEAN KIDNEY TRANSPLANTATION Number of KIDNEY Transplants Rank Rank Rank Rank Rank Rank Rank Rank Rank Rank Rank Pop mills Number of KIDNEY Transplants per million of population Countries eurostat Deceased Living Total Deceased Living Total Croatia Norway , Turkey Latvia Switzerland Belarus * Slovakia Slovenia Cyprus Iceland Malta Georgia * Montenegro Greece Bulgaria Russia * Bosnia & Herz Macedonia Ukraine * Moldova * Totals

13 EUROPEAN ALL LIVER TRANSPLANTATION COMBINED per million of population Croatia Norway Switzerland Turkey Slovenia Belarus * Slovakia Russia * Bulgaria Bosnia & Herz Greece Montenegro Moldova * Georgia * Ukraine * Deceased Living

14 EUROPEAN LIVER TRANSPLANTATION Number of LIVER Transplants Per million Rank Rank Rank Rank Rank Rank Rank Rank Rank Rank Rank Pop mills Living Deceased of population Countries eurostat Donor Donor Total Total Croatia Norway Switzerland Turkey Slovenia Belarus * Slovakia Russia * Bulgaria Bosnia & Herz Greece Montenegro Moldova * Georgia * Ukraine * Totals

15 EUROPEAN HEART TRANSPLANTATION per million of population Slovenia Croatia Norway Slovakia Switzerland Belarus * Russia * Turkey Latvia Bulgaria Greece

16 EUROPEAN HEART TRANSPLANTATION Number of Heart Transplants Rank Rank Rank Rank Rank Rank Rank Rank Rank Rank Rank Pop mills Per million Countries eurostat Total of population Slovenia Croatia Norway Slovakia Switzerland Belarus * Russia * Turkey Latvia Bulgaria Greece Totals

17 EUROPEAN LUNG TRANSPLANTATION per million of population Norway Switzerland Turkey Belarus * Russia *

18 EUROPEAN LUNG TRANSPLANTATION Number of Lung Transplants Rank Rank Rank Rank Rank Rank Rank Rank Rank Rank Rank Pop mills Per million Countries eurostat Total of pop Norway Switzerland Turkey Belarus * Russia * Totals

19 EUROPEAN PANCREAS TRANSPLANTATION per million of population Norway Slovenia Croatia Switzerland Belarus * Turkey Russia * Combined Alone

20 EUROPEAN PANCREAS TRANSPLANTATION Number of PANCREAS Transplants Rank Rank Rank Rank Rank Rank Rank Rank Rank Pop mills Number of PANCREAS Transplants per million of population Countries eurostat Combined Alone Total Combined Alone Total Norway Slovenia Croatia Switzerland Belarus * Turkey Russia * Totals

21 EUROPEAN SMALL BOWEL TRANSPLANTATION Countries Transplants Turkey Data per million of population is irrelevant when only 8 countries are transplanting the small bowel and 27 or 63% of the total are transplanted in 2 countries.

22 EUROPEAN ALL DECEASED ORGAN TRANSPLANTS Croatia Norway Slovenia Switzerland Belarus * Slovakia Latvia Malta Turkey Greece Bulgaria Russia * Montenegro Bosnia & Herz Moldova * Macedonia Cyprus Georgia * Ukraine * Kidney Liver Heart Lung Pancreas Small Bowel

23 EUROPEAN DECEASED ORGAN TRANSPLANTATION Number of Deceased Deceased Deceased Number Deceased Organ Trans Rank Rank Rank Rank Rank Rank Rank Rank Council of Europe Population KIDNEY LIVER HEART LUNG PANCREAS of Small ORGAN per million Countries (millions) Transplants TransplantsTransplantsTransplantsTransplants Bowel Transplants of population Croatia Norway Slovenia Switzerland Belarus * Slovakia Latvia Malta Turkey Greece Bulgaria Russia * Montenegro Bosnia & Herz Moldova * Macedonia Cyprus Georgia * Ukraine * Totals

24 EUROPEAN ALL LIVING DONOR ORGAN TRANSPLANTS Per million of population Turkey Cyprus Iceland Georgia * Norway Switzerland Montenegro Latvia Bosnia & Herz Macedonia Slovakia Greece Ukraine * Belarus * Russia * Moldova * Bulgaria Croatia Kidney Liver

25 EUROPEAN LIVING DONOR ORGAN TRANSPLANTATION P E R M I L L I O N Number of Living O F P O P U L A T I O N Living Living Living Organ Trans Number of Number of TOTAL Rank Rank Council of Europe Population KIDNEY LIVER ORGAN per million Living Kidney Living Liver ORGAN Countries (millions) Transplants Transplants Transplants of population Transplants Transplants TRANSPLANTS 1 1 Turkey Cyprus Iceland , Georgia * Norway Switzerland Montenegro Latvia Bosnia & Herz Macedonia Slovakia Greece Ukraine * Belarus * Russia * Moldova * Bulgaria Croatia Totals

26 EUROPEAN DECEASED AND LIVING DONOR ORGAN TRANSPLANTATATION COMBINED per million of population Croatia Norway Switzerland Turkey Slovenia Belarus * Slovakia Latvia Cyprus Iceland Malta Montenegro Georgia * Greece Russia * Bulgaria Bosnia & Herz Macedonia Ukraine * Moldova * Kidney Liver Heart Lung Pancreas Small Bowel

27 EUROPEAN DECEASED AND LIVING DONOR ORGAN TRANSPLANTATION TOTAL Total Organ Number of Number of Number of Number of Number of Number of Number of Transplants Rank Rank Rank Rank Rank Rank Rank Rank Rank Rank Pop mills KIDNEY LIVER HEART Lung PANCREAS Small ORGAN per million Countries eurostat Transplants Transplants Transplants Transplants Transplants Bowel Transplants of population Croatia Norway Switzerland Turkey Slovenia Belarus * Slovakia Latvia Cyprus Iceland Malta Montenegro Georgia * Greece Russia * Bulgaria Bosnia & Herz Macedonia Ukraine * Moldova * Totals

28 EU 28 DECEASED ORGAN DONORS per million of population Croatia Slovenia Latvia Slovakia Malta Bulgaria Luxembourg Greece Cyprus Heart Beating Non Heart Beating

29 EU 28 KIDNEY TRANSPLANTATION FROM DECEASED DONORS per million of population Croatia Latvia Slovenia Slovakia Malta Greece Bulgaria Cyprus

30 E U 28 K I D N E Y T R A N S P L A N T A T I O N F R O M L I V I N G D O N O R S per million of population Cyprus Latvia Slovakia Greece Bulgaria Croatia

31 EU 28 ALL KIDNEY TRANSPLANTATION COMBINED per million of population Croatia Latvia Slovakia Slovenia Cyprus Malta Greece Bulgaria Deceased Living

32 EU 28 ALL LIVER TRANSPLANTATION COMBINED per million of population Croatia Slovenia Slovakia Bulgaria Greece Deceased Living

33 EU 28 HEART TRANSPLANTATION per million of population Slovenia Croatia Slovakia Latvia Bulgaria Greece

34 EU 28 LUNG TRANSPLANTATION per million of population

35 EU 28 PANCREAS TRANSPLANTATION per million of population Slovenia Croatia Combined Alone

36 EU 28 SMALL BOWEL TRANSPLANTATION Countries Transplants Data per million of population is irrelevant when only 7 countries are transplanting the small bowel and 27 or 73% of the total are transplanted in 2 countries.

37 EU 28 ALL DECEASED ORGAN TRANSPLANTS Per million of population Croatia Slovenia Slovakia Latvia Malta Greece Bulgaria Cyprus Kidney Liver Heart Lung Pancreas Small Bowel

38 EU 28 ALL LIVING DONOR ORGAN TRANSPLANTS Per million of population Cyprus Latvia Slovakia Greece Bulgaria Croatia Kidney Liver

39 EU 28 DECEASED AND LIVING DONOR ORGAN TRANSPLANTATATION per million of population Croatia Slovenia Slovakia Latvia Cyprus Malta Greece Bulgaria Kidney Liver Heart Lung Pancreas Small Bowel

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